Addresses why letters of intent are so critical to the ongoing care of your child and how to create one.
A letter of intent is vital for any parent of a child with special needs. It serves as a comprehensive guide for future caregivers, outlining your child's specific care requirements and daily routines. This document goes beyond legal requirements; it's a personal statement of your child's life and needs, ensuring that their quality of care continues seamlessly in your absence.
What is a Letter of Intent?
A letter of intent is a comprehensive document that outlines your child's personal, medical, and financial information and your wishes for their future care. It serves as a roadmap for future caregivers, trustees, and guardians, helping them make decisions that align with your child's best interests and your family's values.
Unlike a will or trust, a letter of intent is not legally binding. However, it is an invaluable tool for conveying important information and providing guidance to those responsible for your child's care when you can no longer provide it yourself.
Components of a Letter of Intent
When drafting your letter of intent, consider including the following information:
- Personal details - Describe your child's personality, interests, likes and dislikes, and daily routines. Include information about their favorite activities, foods, and possessions.
- Medical history - Outline your child's medical diagnoses, medications, allergies, and special dietary needs. Include contact information for their healthcare providers and a list of past surgeries or hospitalizations.
- Therapy and education - Detail your child's current therapy regimen, including the types of treatment they receive, the frequency of sessions, and their therapists' names and contact information. Also, provide information about their educational history, current school or program, and any accommodations or support services they receive.
- Daily living skills - Describe your child's level of independence in daily living activities such as dressing, bathing, and eating. Provide guidance on how to support them in these areas best.
- Financial information - Include details about your child's financial assets, including any special needs trusts, ABLE accounts, or other resources intended for their care. Provide contact information for the trustees or financial professionals involved in managing these assets.
- Future wishes - Express your hopes and dreams for your child's future, including your preferences for their living arrangements, employment or vocational training, and community involvement.
Remember that your letter of intent should be written in clear, concise language that is easily understood by someone who may not be familiar with your child or your family's unique circumstances. Consider including anecdotes or examples that help illustrate your points and provide a more complete picture of your child's life.
Keeping Your Letter of Intent Up-to-Date
Your letter of intent should be a living document that evolves as your child grows and their needs change. Plan to review and update the document annually or whenever there is a significant change in your child's life, such as a new diagnosis, a change in medication, or a transition to a new school or living arrangement.
Be sure to securely store your letter of intent along with your other important legal and financial documents. Provide copies to your child's trustee, guardian, and key individuals involved in their care.
Educating Your Family and Support Network
In addition to creating a letter of intent, it's important to educate your family members and other support network members about your child's needs and your plans for their future. This step ensures that everyone is on the same page and prepared to work together to support your child.
Consider holding a family meeting to discuss your letter of intent and overall special needs plan.
- Share information about your child's diagnoses, treatment plans, and support needs.
- Discuss your financial and legal arrangements, including special needs trusts and guardianship plans.
- Outline roles and responsibilities for family members and other support network members.
- Address any concerns or questions your family may have about your child's future care.
By fostering open communication and involving your family in the planning process, you can help build a robust and cohesive support system for your child that will endure long into the future.
The Takeaway
A letter of intent is more than a document; it is a profound act of love and responsibility. It ensures that your child's life continues to be as fulfilling and supported as possible, even in your absence. By detailing your child's needs, routines, and joys, you provide future caregivers with the tools they need to offer compassionate and informed care that truly honors your child's individuality and your family's values.